My life in Science whilst raising a child with type 1 diabetes

Biomedical Science, Type 1 Diabetes, Coeliac Disease and other findings

Diabetes Blog week – and Biomedical science exams!!

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Hi folks, it’s a busy time for me at the moment, I have completed my honours year research project aimed at investigating the inflammatory cellular infiltrates in osteoarthritis – using immunohistochemistry techniques.  This process developed my enthusiasm for research, and I learned lots of new lab skills – which will no doubt help me on my way to being a wonderful Diabetes researcher (one can dream).

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I have exams next week (insert image of a tiny violin here) –  Biomedical genetics and public health microbiology.  Therefore, I’ve not written a blog for a bit.  However, there has been lots of other interesting events happening.  First off, I wrote to my local MSP asking why the Medtronic 640g with smartlink technology doesn’t seem to be filtering it’s way to Scotland yet, and to discuss with him the benefits of continuous glucose monitoring (CGM) in managing type 1 diabetes.

The reply from him stated that according to SIGN guidelines, it is not recommended that a person with type 1 diabetes should use a CGM for routine management.  So, for now until there is further research on the benefits of using a CGM,  with insulin pump therapy, we must continue to prick my son’s finger >7 times a day. Here’s the thing I feel as his parent, – his fingers are ruined.  I say that with conviction! A better future for the testing of blood glucose must surely be on the horizon? This is an open call – from me! … However, as a Biomedical Science student, I have no money. Just to be clear on that!

Recently, we were lucky to have a mini trial of a CGM (6 days), on loan from our fantastic paediatric team at Crosshouse Hospital, in Ayrshire.  This allowed us to see what is happening with John’s glycaemic control, outwith the times that medtronic-cgmwe prick his fingers.  Shockingly, he suffered a serious hypo one morning which lasted over an hour – whilst he lay asleep in bed.  Importantly, whilst we all lay asleep in bed. He never woke to any alarms, or sensations that he was having a hypoglycaemic attack/episode.

This sets of major anxiety for parents of children with type 1 diabetes.  The “what if” scenario is one which my brain does not want to answer.   I understand there are major cost implications in offering a patient CGM.  The NICE guidelines on integrated pump and sensor technology (pump + CGM) discusses the benefits of using this technology – particularly if a patient is experiencing nocturnal hypoglycaemia! I could take a stab in the dark guess that this was a post-exercise hypo, as he has been snowboarding a lot lately, and playing football, and skateboarding, and ice skating, and… ok! you get the picture, he is a sporty young lad. Functioning pancreas or not – we live life with joy – and lot’s of bags full of equipment and sugar needless to say.

Type 1 gardenjohnjumpball-1Diabetes aside, it is also coeliac awareness week and we have been sharing a few stories on Facebook to raise awareness of this too! Apparently, there are over half a million people in the UK whom are living with coeliac disease, undiagnosed.  This raises concern with me, as I know all about the tissue damage and the effects of this if the disease goes untreated – so please click on the link above, and read their campaign! Our son’s diagnosis was pivotal in helping him feel good again, after months of painful cramps, diarrhoea, bloody bowel movements and weight loss – so don’t hang about folks.  Have a watch at Caroline Quentin’s recent piece shown on ITV’s This Morning to see how easy to procedure can be.

As far as study leave is going, that I will leave to the imagination.. I am typing a blog at the moment, which begs the question, how much revision have I achieved today?  #timemanagement.  The only other thing left to say is, I think I might go for a PhD or post-graduate study. Should I? Answers on a postcard.

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